Now that Im looking at it as something I have to do Im willing to deal with anything.. Before signing off, Claire implored viewers to do one thing. Some people worried that shed waited too long and wouldnt be given the chance at continued life. It hurts everything inside of me to make this video, she said into the camera. real family is great. "Claire's gift is huge, I want your family to know that your daughter is a hero. She inspired countless people, invited no, demanded honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Wineland uploaded videos in her personal vlog. She listened to the risks and the long list of side effects and emerged unfazed. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. The family received immense support from friends, and community. 2023 BBC. The BBC is not responsible for the content of external sites. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. Search by Name. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide with a median average age of 40. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She has a younger sister, Elanore Nordquist. "If my biggest problem in life was to be healthy, I'd be incredibly bored. You are an inspiration and brought joy to many. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. After the death of Claire Wineland, her family intends to carry on the noble work started by her. She decorated her hospital room, and posted inspirational messages on its walls. They remained close friends, and shared the responsibilities of taking care of their daughter. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. Since there was no formal contract in place, she did not have any legal option too. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. She needed financial help. she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Life isnt just about being happy. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. But not long after the successful surgery, hope turned to fear. Who is Claire Wineland? Required fields are marked *. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. I'm grateful for the chance to keep being a person," she said. In 2017, Yeager recalled a conversation with Claire about death. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Really. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. Menu. She needed financial help. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. 2023 Cable News Network. "None of it spooked me," Claire said afterward. The Times-Picayune. It's not about how you feel second to second," she said. She was 21. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. There is no passionate rant to be had here I am just happy and thought I would let you all know. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. James Watt Cause of Death, Age of Death, and Other Facts! Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. At the time of birth, she had the life expectancy of only 5 years old. Read about our approach to external linking. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Cystic fibrosis is a genetic condition with no known cure. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She loved every moment of her life, even those days when she was in hospital. "Go enjoy it, 'cause there are people fighting like hell for it.". Get to know the real life super hero behind our bubbly Snap identity. She watched one of her doctors squirm as he gave her the safe-sex talk. It's a reality of living with cystic fibrosis she's come to accept. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. At the time of birth, she had the life expectancy of only 5 years old. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. I had to be honest, she once explained. She was an avid dog lover and had a dog named- Daisy.. Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. Im not an innocent and Im not a child. Notable quote: I do these talks to make a point. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. "It's not for me and never has been. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Im just really overwhelmingly grateful for all of this. So grateful for everything this month. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. I use to live half time with my dad and half with my mom, but since I got sick we . Claire Wineland's death was caused by stroke. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. The BBC is not responsible for the content of external sites. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. La Jolla, California CNN . Wineland stated she did not have the energy or the money to take the case to court. Claires Place Foundation is planning to continue extending support to patients. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. Her foundation said she had died peacefully, surrounded by family. She had a popular YouTube channel, gave . We invite you to share condolences for Claire Wineland . The cause of death was a massive stroke she suffered soon after the transplant surgery. She was also a speaker for the motivational TEDx Talks.. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. Living a life we can be proud of is something we can control. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited cures, telling her to eat more pineapple or that a mushroom cleanse would take care of everything. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. All Rights Reserved. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Living a life we can be proud of is something we can control." - Claire Wineland. She was 21 years old. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Wineland miraculously came back to life. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. She performed with Philips Breathless Choir, as a solo singer. Snap Greene is the alter-ego of 13 year old Claire Wineland. She died on Sunday September 2, 2018, after suffering a. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. 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